IA Greater London West

Our friends at the Colostomy association and the Royal Society of Medicine are hosting what promises to be an interesting day of presentations and discussions:

Medicine and Me: Living with colostomy

Wednesday 14 April 2010

Venue: Royal Society of Medicine, 1 Wimpole Street, LONDON, W1G 0AE, England

organised by the Royal Society of Medicine in association with Colostomy Association

Participating Sections:
Medicine & Me : Public Engagement

‘Medicine and Me’ conferences, initiated and developed by the Royal Society of Medicine, are specifically designed for patients. These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues in a particular condition.

‘Medicine and Me: Living with colostomy’ is jointly organised by the Royal Society of Medicine and the Colostomy Association.

‘Medicine and me’ meetings aim to provide a forum in which patients’ concerns about their illness are given top priority. The meetings provide an opportunity for patients and their families to share their experiences, to hear about the latest research and to question the experts.

For more information and registration, visit  http://www.rsm.ac.uk/academ/mmcolostomy.php

Saturday 6th March 2010
If you have an Internal Pouch, or are thinking about having one, this is a chance to meet others with similar
experiences and get the answers to all those questions!

A day of interactive workshops and presentations on all aspects of living with an internal pouch
Hear the latest information and developments in pouch surgery from specialist nurses and surgeons and take the opportunity to meet up with others who have taken this journey.

Join us at:

York Science Park,
Innovation Way,Heslington,
York YO10 5DD

Booking is essential!

Booking fee of £5. Package includes lunch.

Online booking facility is now available at http://www.iasupport.org/pouch_infoday.aspx. Alternatively you can download a booking form from http://www.iasupport.org/pdfs/pouchinfodaybookingform2010.pdf and after completing return to National Office with your booking fee.

For all the details visit www.iasupport.org, or contact the Internal Pouch Coordinator internal.pouch@iasupport.org

Flyer below :.

You are all cordially invited to a MiniMeet in Victoria, Central London!

Venue:

Grosvenor Hotel
Hotel Lounge
101, Buckingham Palace Road (map)
London SW1W 0SJ

Date: Monday, 22 February 2010
Time : 6.00- 7.00 pm

RSVP: If you wish to attend or would like further information contact the convener –

Mr Mithu Chellaram (mithuchellaram@yahoo.co.uk)
81 Torbay Road, London

Or just come along on the day and look out for the IA logo.

FUTURE MEETINGS
May 2010      6.00- 7.00 pm   {exact date to be confirmed}
Stable Arts Centre/Walled Garden, Gladstone Park, Neasden

June/July 2010      6.00- 7.00 pm   {exact date to be confirmed}
Regents Park (Baker Street)

Do you have a pouch or are thinking about having a pouch?  Come along to the pouch social for a nice evening and some friendly support.

The next Pouch Evening will be on Saturday 5th December 7.30pm.

Burgers(and other food) at Maxwells in Covent Garden.

Maxwells

8-9 James St
London, WC2E 8BH

MAP

Hope to see you there. Let us know if you can make it.

Please contact Rachel Hayward on 07906 862664 or email
rachel.hayward@iasupport.org to book your place or more info.

You are invited to

IAGWL AGM AND MEMBERS MEETING

University College Hospital, Euston

Saturday 14 November 2009 : 2.00 – 4.00 pm

Seminar Room PO2 {The P02 Seminar Room is located on the second floor of the Podium (the lower side of the building)}.

The AGM will be held between  (2.00 – 2.45pm) and this will be quickly followed by a members meeting and a few talks. ALL are welcome to both sessions, but it would be really good if you can make it for the member’s meeting.

• Members Meeting – Q & A session with Mr Austin O’Bichere and Elaine Cronin (stoma care nurse)
• Presentation – ‘Our Website’ (Twm Davies)
• Vote of Thanks (Richard Bowden/Eirwen Smith)
• Meeting Closed (4.00)

Aside from being our group’s president, Mr O’Bichere is a consultant colorectal surgeon (which basically means that bowel operations, ostomies and pouches are among his expertise). So this a perfect time for you to ask some of the questions related to surgery and management. We are also pleased to have Elaine Cronin from St Mary’s to help answer you questions about stomas, appliances and diet.

Refreshements will be provided, please let Charu know if you are intending to come so that we can plan, but there is no need to book, please just turn up on the day.

charu39_patel@hotmail.com

Do you have an internal pouch, or are thinking of having one?

Would you like to meet up with others who have and ask questions and share experiences?
Deciding to have a pouch can be a difficult decision to make, and talking to others in a relexed atmosphere can
be helpful.

If you would like to come along for a drink, or some dinner, and a chance to chat to others, then please join
us at

Piccolo Diavolo
8, Old Compton Street, Soho, London. W1D 4TE
12th September 2009 at 7.30pm
Please contact Rachel Hayward on 07906 862664 or email
rachel.hayward@iasupport.org to book your place or more info.
Organised by SE London & W Kent IA

See Flyer for more information:

September pouch social.pdf

On Saturday 1st August – meeting at 1pm.

Sandra Silva, our very own Blue Badge Guide will be leading our Summer Stroll around some of London’s most beautiful landmarks and scenery.

• Meet outside St. Paul’s Tube Station (Central Line) at 1pm.
• We will then stroll along to St. Paul’s Cathedral, which is preparing to celebrate its 300th birthday in 2010.
• We will take a look inside St’ Paul’s, (entrance fee being £10 each – group rate, £9 each for seniors and £3 for children.
• When we leave St Paul’s, we will walk over the Millennium Bridge, taking a look at Shakespeare’s Globe Theatre, Tate Modern and much more.   We will be able to take in all these sights with the added benefit of Sandra’s knowledge of their history and current use.

We will end the tour with tea and cakes

More info to come in the newsletter. But drop us a message here if you wish to attend.

Look forwards to seeing you!

You are all cordially invited to a MiniMeet. This is a new initiative to promote IAGLW and allow members who live in the vicinity of a local event to meet informally in a convivial setting.

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MEETING

The first MiniMeet will be at -

Venue : The Café in Queens Park, Harvist Road, London NW6 6SG

Date : Monday, 3 August 2009

Time  : 6.00- 7.00 pm

If you wish to attend or would like further information contact the convenor –

Mr Mithu Chellaram
81 Torbay Road
London NW6 7DT

or just come along on the day and look out for the IA logo.
FUTURE MEETINGS
Future MiniMeets are planned. The dates and venues are being finalized – more details in the next Newsletter.

The internet has become a valuable source of information and comfort for people coming to terms with stomas and other issues related to their conditions. Not only can people access information and advice about their surgery and talk to other people in similar situations, but facilities such as online shopping and entertainment can help during difficult times when leaving the house is problematic.

When it comes to support, the option of speaking to a person directly via the phone, or for a meet up is always available (contact the IA or anyone on our committee), but there are also times where the anonymity of the internet makes it easier for some to get answers to topics which they would not feel comfortable discussing in person. Read the rest of this entry »

From the IA News posting

Department of Health Consultation:
Arrangements under Part IX of the Drug Tariff for the provision of stoma
and incontinence appliances and related services to Primary Care.
An overview of the new arrangements under Part IX of the Drug Tariff for the provision of stoma
and urology appliances – and related services – in primary care has been published on the

Department of Health website at:

http://www.dh.gov.uk/en/Consultations/Responsestoconsultations/DH_097226

Some of the key points are:

• The new arrangements will be implemented from 1 April 2010 subject to amendment Regulations being laid and amendment Directions being made.
• Dispensing Appliance Contractors (DACs) and Pharmacy Contractors (PCs) who dispense prescriptions can choose to offer either Essential Services or Essential plus either both or one of the Advanced Services.
• Essential services that must be provided include a repeat dispensing service, appropriate advice, a home delivery service and a supply of wipes and disposal bags.
• Advanced services include stoma appliance customisation and appliance use reviews (AURs).
• AURs must be conducted by a specialist nurse working on behalf of the DAC or PC or by pharmacist, either in the home of the user or at the DAC or PC premises, where there must be a specially designated area for confidential consultation. Where possible, these specialists must maintain close contact with the NHS healthcare professional looking after the user.
• The new arrangements have been put in place to ensure that DACs operate within a similar clinical governance framework to PCs and that PCs offer a similar level of service as the DACs. The Department of Health lists the key aims as:
  • Maintain – and where applicable – improve patient care;
  • Ensure equitable payment to DACs and PCs for the provision of equivalent services;
  • Achieve transparency between what is paid for services and what is reimbursed for items.
• The detail is in the remuneration and reimbursement arrangements that apply to the contractors (DAC & PC).