Welcome

This noticeboard contains regularly updated articles and news for those in the Greater London West region. We list the activities of the local group  together with up and coming  events and meet-ups.  If you  wish to contribute event details, articles or creative works, then please contact webmaster@iaglw.org

This site complements the national site at http://www.iasupport.org/ which contains broader information about the Ileostomy association.

London Pouch Night out

Entry Posted January 8th, 2012

From the main IA boards:

http://www.iasupport.org/forum/forum_posts.asp?TID=10780&PID=236594#236594

It’s time for another get together, and due to such positive feed back on the last venue I’ve decided on Jamies in Canary Wharf again on Saturday February 4th at 7:30pm.
For those of you not familiar with Jamies, the menu is very reasonably priced for the quality of the food with something to please all tastes and pockets. There’s also a great atmosphere and it’s conveniently located on the Jubilee line and DLR. The website gives great reviews and a great night was had by all at the last pouch dinner.

It will be great if most of you can make it along. Please let me know ASAP if you are coming along so I can finalise the reservation.

If you know anyone new that has recently had surgery considering pouch at whatever stage, please invite them along. As always partners/freinds are more than welcome to join us.

Jamie’s Italian, Canary Wharf
Unit 17
2 Churchill Place
Canary Wharf
London
E14 5RB

MAP

LOCATION AND TRANSPORT
Nearest parking:
Canada Place – below Waitrose – 2 minutes from restaurant
Jubliee Place / Cabot Place – 5 minutes from restaurant

Canary Wharf Tube
5 minutes walk

Canary Wharf DLR
5 minutes walk

Follow the Link above to find contact details.

Annual General Meeting & Social

Entry Posted November 24th, 2011

AGM LOGO

You are warmly invited to the Annual Meeting of IA Greater London West . 

 

Existing Member?
Thinking of Joining?
Need support?
friend or family member of someone with an ileostomy or pouch?
All welcome!

Our President, Colorectal Surgeon Mr O’Bichere, will take a Q&A session for all Ileostomy and Pouch related issues and there will be a raffle with tempting prizes – so do join us

Date           Saturday,  4 February 2012

Time          2pm until 4pm

Venue        University College Hospital,

At the hospital, follow the IA signs

Seminar Room PO2 (2nd Floor)

235 Euston Road, NW1 2BU

http://www.uclh.nhs.uk/Our+hospitals/University+College+Hospital.htm

The nearest tube station is: Warren Street or Euston Square

Entry Posted September 20th, 2011
Pouch Information Day 2011

Pouch Information Day 2011

From the main IA support site.

“If you have an Internal Pouch, or are thinking about having one, this is a chance to meet others with similar experiences and get the answers to all those questions!

A day of interactive workshops and presentations on all aspects of living with a pouch.

Hear the latest information and developments in pouch surgery from specialist nurses and surgeons and take the opportunity to meet up with others who have taken this journey.

Join us at :
King’s House Conference Centre, King’s Church,
Sidney Street, Manchester, M1 7HB”

Booking is essential. See here for more details

 

Come and join us for coffee and cakes

Entry Posted May 28th, 2011

Our next meeting….Come and join us for coffee and cakes

Sunday, July 3rd 11am-1pm

Ouside shot of the cafebrera

Ouside shot of cafebrera

Café Brera

Lyric Theatre, 2 King St, London W6 0QL

020 8741 9291 ?cafebrera.com

(Just opposite Hammersmith Tube station, with off street parking off King Street)

Have you ever wondered who are the people who send you the IA Journal and newsletter and run IAGLW on your behalf.? Well here is your chance to meet us.

We will be at the café from 11am until 1pm– do join us for a chat and a coffee (no charge) – then maybe on to some shopping.

Weather permitting, we will sit outside, if not, we will be inside. The café is quite small and you can see all the tables from the door, so don’t be shy, come and meet the gang – committee members, past members, new members, old friends and new friends.

See you there – it’s a date!

Pouch information day presentations

Entry Posted March 27th, 2011

Just wanted to draw your attention to the fact that the presentations from the last two Pouch information Days are available on the main IA web site here.

http://www.iasupport.org/pouch_events.aspx

The link above contains specialist material targeted towards those with pouches or who might have one in future, including diet and psychological aspects.

Then life took control

Entry Posted March 27th, 2011

One of our members Sam Shakes has written a book about her experiences of living with chronic disease.

Book cover - then life took control

Then life took control.

Then Life Took Control Press Release

Beating bowel cancer event

Entry Posted February 24th, 2011

See flyer below and link to the booking information on Saturday 2nd April 2011

http://www.beatingbowelcancer.org/Content/533/Beyond-Bowel-Cancer

The Patient Voices annual event is organised for patients, their families and carers living with and beyond bowel cancer. It celebrates their achievements and aims to make a positive impact on their lives by giving the opportunity to learn more about how they can live as normal a life as possible, for as long as possible.

The programme includes a range of presentations and ways to participate, for example:
Professor Sir Mike Richards, National Cancer Director,  is the keynote speaker talking about current developments in healthcare policy.
One to one consultations will be on offer with specialist healthcare nurses and therapists workshops on positive living with a stoma practical demonstrations from companies such as John Lewis who will provide advice on looking good and feeling better.

Why should patients, carers and their families attend?

  • To learn of updates in developments and innovations in the diagnosis and management of bowel cancer
  • A chance to discuss their challenges and support needs with healthcare professionals and other patients
  • The opportunity for patients, carers and families to learn more about the support available for medical, social, psychological, financial and information needs
  • To be able to take away practical information and ideas to improve the quality of their lives through one-to-one consultations, demonstrations and workshops.

Bowel Cancer awareness event

Entry Posted February 24th, 2011

See flyer below (click on it for larger image)

Bowel information day Flyer

Internal Pouch Information Day

Entry Posted September 27th, 2010

The next Internal Pouch Information Day will take place on Saturday November 6th at the Birmingham and Midland Institute (http://www.bmi.org.uk/). A day full of talks and interactive workshops, this is your chance to get the answers to all those questions from both the experts and those with a similar experience to yourself. There will be something of interest to everybody, whether you are still going through the decision making process, in the middle of surgery or are now an old hand.

The day will kick off at 9.30am and run through until 5.00pm, lunch and refreshments through the day will be provided. There is a £5 fee to reserve your place and bookings will be taken from 9.00am Monday 4th January. You can book by credit/debit card by calling National Office on either 0800 0184 724 (free) or 028 9334 4043.

Or

Book using the online form

Previous experience shows demand for these events is very high, early booking is essential to guarantee your place.

As well as the Information Day itself, we are also organizing social events the evening before and evening after, please let me know if you are interested in attending either/both of these (be aware as we are in Birmingham, the home of Balti, we will be sampling one of the Balti houses on the Friday evening which some may find a little challenging)

If you require any further information please do not hesitate to contact  John Mullins – Pouch Group Coordinator(john.mullins@iasupport.org)

NHS White Paper Public Meeting (in Ealing)

Entry Posted August 15th, 2010

Tuesday 17th August 2010

Liz Cantell Ealing Town Hall W5 2BY

17:00-19:00 pm

  • Come and learn more about the government’s vision for the future of the NHS.
  • Find out how you can have a say in the consultation around the change

Speakers:

  • Mr. Stephen Day (Director of Adults Services Ealing Council)
  • Mrs. Ursula Gallagher (Director of Quality, Clinical Governance and Clinical Practice at Ealing PCT)

For further information, please download the flier here